Home
Contact ScotGEN
Steering Group
Contributors
Accessing Material
Documents
Events/Courses
Publications
News
Links
Message Forum
Research Studies
Login
 
Adobe Reader Button

Web Links

Below is a list of web links to health, genetics, education and other useful sites that are currently online. Click on any link to be taken to that website.

Antenatal genetics and newborn screening

Cancer & Genetics

  • Cancerbackup - Europe’s leading cancer information charity
  • Exercise and cancer - Exercise based cancer rehabilitation
  • Inside cancer - Multimedia guide to cancer biology
  • OPERA - genetic breast/ovarian cancer risk assessment tool
  • Understanding Cancer series: Gene Testing - illustrates what genes are, explains how mutations occur and are identified within genes, and discusses the benefits and limitations of gene testing for cancer and other disorders.

Ethics & Genetics

  • bioethics.net - The American Journal of Bioethics
  • Bionet - Created by 8 European science centres and museums, you may "explore and debate the latest discoveries in life sciences".
  • gen.ethix - an online Flash game about decision making on ethical issues stemming from advances in biotechnology and molecular medicne.
  • Genethics.ca - a wide list of resources on many aspects of genetics and ethics.

Genealogy

Genetic Disorders

Genetics - General

  • Blazing a Genetic Trail - highly accessible genetics information and background from Howard Hughes Medical Institue.
  • Classic Papers in Genetics - links to some of the most important papers in the history of genetics research.
  • DNA from the beginning - An animated primer on the basics of DNA, genes and heredity
  • DNA interactives - is an interactive Web site describing DNA and its structure and function, the scientific history of its discovery, and its development into a tool used in biology, technology, and medicine.
  • Generation Scotland - The main focus of Generation Scotland is on health and illness factors that are passed on in families. These inherited factors, or genes, influence our risk of being affected by a number of common causes of ill health.
  • OMIM - Online Mendelian Inheritance in Man - This database is a catalog of human genes and genetic disorders and is intended for use primarily by physicians and other professionals concerned with genetic disorders, by genetics researchers, and by advanced students in science and medicine.
  • The New Genetics - This 90-page educational booklet from the National Institute for General Medical Sciences explains how genes influence health and disease and more.
  • Your genes, your choices - booklet which presents hypothetical situations, then explains the background science.

Genetics Education

  • Access Excellence - a national educational program for high school biology teachers sponsored by Genentech, Inc. Includes Genetics Websites and Graphics Gallery.
  • Centre for Genetics Education, Sydney - Provides current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them.
  • DNA Interactive (DNAi) - developments in genetics and human genome project illustrated through animations
  • European Science Education Media (EUSEM) - presents multimedia content on public funded European research in the areas of Health, Genomics and Food Safety.
  • FBR Chances Choices - Using a series of connected scenes, this unit follows various members of the Chance family as they discover and deal with a variety of risks to their genetic health.
  • Gene Almanac (Dolan DNA Learning Center) - includes a variety of instructional materials and information on educational programs offered by Cold Spring Harbor Laboratory for both students and teachers.
  • Genetics Education Center (University of Kansas Medical Center) - covers the Human Genome Project, careers in genetics, and offers a wide variety of links to other resources, including lesson plans.
  • GENIE - Virtual Genetics Education Centre - The virtual genetics education centre is an expanding collection of evaluated resources for teaching and learning in genetics.
  • Human Genome Project - This site is the official U.S. government site of the Human genome Project. It provides information on the project and has links to various other related sites.
  • Learn Genetics: Genetic Science Learning Centre - Home site of University of Utah Department of Genetics. Many resouces for teachers and students.
  • MendelWeb - MendelWeb is an educational resource for teachers and students interested in the origins of classical genetics.
  • Telling Stories - This resource has been developed to illustrate the impact and utility of genetics on real life health care and to help practitioners gain more understanding of genetics in professional practice.
  • The NHS National Genetics Education and Development Centre - Works with a range of groups throughout the UK to facilitate the integration of genetics education into all levels of education and training for all NHS health professionals.

Genetics Groups and Societies

  • Breakthrough Breast Cancer -
  • British Society for Human Genetics - BSHG is an independent body representing UK human genetics professionals.
  • Clinical Genetics Society - The Clinical Genetics Society (CGS) was set up in 1970 to bring together doctors and other professionals involved in the care of individuals and families with genetic disorders.
  • Contact a Family - Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition.
  • Down Syndrome Association - Helping people with Down Syndrome to live full and rewarding lives.
  • Eurogene - Portal of the European Genetics Foundation
  • Foundation for Genomics and Population Health -
  • Fragile X Society - We are the UK registered charity providing support, information and friendship to families whose children and relatives have fragile X syndrome. Also provides information to professionals.
  • Genetics Society - The Genetics Society is a `learned society' whose membership of over 2,000 consists of most of the UK's active professional geneticists, including teachers, researchers and students.
  • GIG (Genetic Interest Group) - The Genetic Interest Group (GIG) is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
  • Human Genetics Commission - UK government's advisory body on new developments in human genetics.
  • Marfan Association UK -
  • Muscular Dystrophy Campaign - The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders. We have pioneered the search for treatments and cures for over 45 years.
  • National Osteoporosis Society - The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease.
  • National Society of Genetics Counselors - (U.S.)
  • Psoriasis Scotland Arthritis Link Volunteers - Scotlands first ever psoriasis charity
  • Scottish Cancer Group - The Scottish Cancer Group advises the Executive on the implementation of the Cancer Strategy Cancer in Scotland : Action for Change.
  • Scottish Huntingtons Association - offers support and practical help to the person with Huntingtons Disease and their carers who are often families.
  • Sickle Cell Society - The Sickle Cell Society believes that every sickle cell sufferer has the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this.
  • Tuberous Sclerosis Association - Welcome to the Web site of the Tuberous Sclerosis Association, the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC).
  • Turner Syndrome Support Society - The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis.
  • UK National Screening Committee - The UK National Screening Committee is chaired by the Chief Medical Officer for Scotland and advises Ministers and the NHS in all four UK countries about all aspects of screening policy and supports implementation.
  • Unique - rare chromosome disorder support group - Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Genetics in Health Care Practice

  • DMD Registry - The DMD Registry provides a national DMD database for clinicians, health professionals and researchers to help accelerate the development and delivery of new treatments for Duchenne and Becker Muscular Dystrophy.
  • East of Scotland Human Genetics Laboratories -
  • Gene Clinics - Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management.
  • GeneSense - GeneSense uses a life cycle approach to investigate the issues of genetics in healthcare practice. These issues are illustrated utilising a number of case studies for each identified life stage.
  • Genetic Testing in Scotland - a guide for healthcare professionals -
  • West of Scotland Regional Genetics Service - This was one of the first integrated genetics institutes to be established in the UK and has an international reputation as a centre of excellence for research and teaching ......

Genetics Journals

Human Genome

Knowledge Parks

Patient Genetic Information

Wikis