The Scottish Clinical Genetics Forum is a network that aims to help Scotland's four NHS Clinical Genetic Centres offer services that meet patient needs. It aims to help develop innovative, seamless services and to integrate patient and public views into service planning and care guidelines. The Forum regularly includes representation from the four Clinical Genetic Centres, the Genetic Interest Group and Gengage; the National Services Division and the Scottish Government Health Directorates. Other representatives from overlapping healthcare specialities, or patient support organisations participate as appropriate.
Guidelines
Family history of cancer: current published guidelines
Breast cancer
Colorectal cancer
Ovarian cancer
Policy Documents
Events
Scottish Clinical Genetics Forum - November 2010
Date: 23/11/2010
Contact:
information:
Scottish Clinical Genetics Forum, Tuesday 23rd November 2010, Merchants' Hall, Edinburgh
Papers presented:
Neuromuscular Network update: Cheryl Longman
Glasgow Update 2010: Rosemarie Davidson
Standardisation in Recording Patient Activity Reporting in Scotland: Carol Gardiner
Edinburgh Centre Updated Quality Markers
Familial Hypercholesterolaemia
Standardised leaflets and forms: NHS Lothian
Scottish Clinical Genetics Forum - Aberdeen update
Forms
Familial Hypercholesterolaemia - discussion document
The Scottish F.H. Working Party
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Familial Hypercholesterolaemia DNA test request form
Scottish Molecular Genetics Consortium
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Consent form for genetic sample storage and analysis
North of Scotland Regional Genetics Service
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Familial Hypercholesterolaemia: Patient Information Leaflet - updated for 2010
Patient information leaflet. Please contact Lynn Thomson lthomson3@nhs.net , Quality Development, NHS Grampian if you would like her to email you a template to adapt it into a booklet for your local use.
added: 21/01/2010 10:52:59
Familial Hypercholesterolaemia - cascade testing - reply form2
added: 17/03/2010 11:29:55
Familial Hypercholesterolaemia - relatives letter
added: 17/03/2010 11:30:43
Other Documents
Talks
Familial Hypercholesterolaemia
Power point presentation by Catriona Brown, Zosia Miedzybrodzka & Margaretha Van Mourik
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