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Scottish Clinical Genetics Forum

The Scottish Clinical Genetics Forum is a network that aims to help Scotland's four NHS Clinical Genetic Centres offer services that meet patient needs. It aims to help develop innovative, seamless services and to integrate patient and public views into service planning and care guidelines. The Forum regularly includes representation from the four Clinical Genetic Centres, the Genetic Interest Group and Gengage; the National Services Division and the Scottish Government Health Directorates. Other representatives from overlapping healthcare specialities, or patient support organisations participate as appropriate.  


Guidelines

Family history of cancer: current published guidelines

Breast cancer

Colorectal cancer 

Ovarian cancer


Policy Documents


Events

Scottish Clinical Genetics Forum - November 2010
Date: 23/11/2010
Contact:
information:

Scottish Clinical Genetics Forum, Tuesday 23rd November 2010, Merchants' Hall, Edinburgh

Papers presented:

Neuromuscular Network update: Cheryl Longman

Glasgow Update 2010: Rosemarie Davidson

Standardisation in Recording Patient Activity Reporting in Scotland: Carol Gardiner

Edinburgh Centre Updated Quality Markers

Familial Hypercholesterolaemia

Cancer genetics

Standardised leaflets and forms: NHS Lothian


Scottish Clinical Genetics Forum - Aberdeen update


Forms

Familial Hypercholesterolaemia - discussion document
The Scottish F.H. Working Party
added: 22/07/2009 15:21:54

Familial Hypercholesterolaemia DNA test request form
Scottish Molecular Genetics Consortium
added: 22/07/2009 15:24:03

Consent form for genetic sample storage and analysis
North of Scotland Regional Genetics Service
added: 22/07/2009 15:25:48

Familial Hypercholesterolaemia: Patient Information Leaflet - updated for 2010
Patient information leaflet. Please contact Lynn Thomson lthomson3@nhs.net , Quality Development, NHS Grampian if you would like her to email you a template to adapt it into a booklet for your local use.
added: 21/01/2010 10:52:59

Familial Hypercholesterolaemia - cascade testing - reply form2

added: 17/03/2010 11:29:55

Familial Hypercholesterolaemia - relatives letter

added: 17/03/2010 11:30:43

Other Documents

Talks

Familial Hypercholesterolaemia
Power point presentation by Catriona Brown, Zosia Miedzybrodzka & Margaretha Van Mourik
added: 22/07/2009 12:21:25